This study gives great insights into parents’ experiences with germline sequencing in pediatric oncology. That said, a few areas could use a bit more clarification. Did parental experiences vary based on factors like socioeconomic background, cultural differences, or previous exposure to genetic counseling? Also, since the study looks at parental worries, it’d be interesting to know if those concerns lessened over time or if any follow-up support was provided. Since genetic knowledge levels varied, do the authors have any recommendations for making genetic counseling clearer and more accessible for all parents?
The comment raises important points regarding factors influencing parental experiences with germline sequencing. While the study does not provide a detailed comparison across socioeconomic or cultural backgrounds, it acknowledges that genetic knowledge varies among parents. Future research could explore these demographic influences to better understand disparities in comprehension and decision-making.
Regarding parental concerns, the study captures initial reactions to sequencing results but does not assess how these concerns evolve over time. Follow-up studies could help determine whether worries persist or decrease and whether additional counseling or support mechanisms are needed.
Lastly, while the study highlights the need for improved genetic counseling, it does not provide specific recommendations. Future efforts could focus on developing clearer communication strategies, such as visual aids or tailored counseling approaches, to enhance accessibility for all parents.