ScienceGuardians

ScienceGuardians

Did You Know?

ScienceGuardians protects the academic community

Diagnosis and treatment of the Ehlers-Danlos syndromes in China: synopsis of the first guidelines

Authors: Kexin Xu,Guozhuang Li,Zhihong Wu,Terry Jianguo Zhang,Nan Wu,Unknown Author
Publisher: Springer Science and Business Media LLC
Publish date: 2024-5-13
ISSN: 1750-1172 DOI: 10.1186/s13023-024-03121-0
View on Publisher's Website
Up
0
Down
::

The paper pushes for a big team effort (MDT approach) to tackle EDS, which sounds great in theory. but how’s this actually gonna work in real life, especially in places with fewer resources?

Like:

1. Not every hospital has a dream team of specialists. How do you make this happen in smaller towns or less fancy clinics where they might not even have a geneticist on speed dial?
2. Since a lot of this relies on doctors’ gut feelings (especially for hEDS, which has no genetic test), how do you stop different teams from giving totally different advice?
3. The guidelines sound smart, but is there any early data showing this team approach actually gets people diagnosed faster or living better? Or is this more of a “trust us, it’ll help” situation?
Basically, cool plan, but how do we know it’s not just wishful thinking for most patients?

  • You must be logged in to reply to this topic.